I spent much of my childhood trying to hide my CF. But after an emergency double-lung transplant, the loss of my sister, and years of mental health challenges, I’m proud to belong to a CF community ...
Cystic fibrosis taught me to prepare for the worst, but pregnancy taught me to make room for hope and trust my body alongside medical care. Through my journey to motherhood, I learned that CF doesn’t ...
Since 2013, I’ve had the privilege of being a fitness coach, nutrition coach, public speaker, influencer, and businesswoman. While my true passion lies in adventure — particularly physical challenges ...
For those living with cystic fibrosis, it does not pause when you clock in to work. It doesn’t wait until meetings are over or the workday officially begins. CF is present long before arrival — in ...
An elite recognition and fundraising program celebrating Nashville’s most engaged young professionals. Know a standout young professional who is active in their career and community? Nominate them to ...
I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...
When you reach middle age, you start to realize that your body is beginning to break down. You wake up with a pain somewhere for no apparent reason that was never there before. You just don’t seem to ...
Persistence, resilience, and strength of character can overcome many obstacles in life. Marlene Pryson, 86, probably one of the oldest individuals living with cystic fibrosis, certainly possesses all ...
My family and I just made a huge move from Oklahoma to Oregon for my husband’s new job — our own Oregon Trail, but with meltdowns and caffeine instead of oxen and dysentery. Survival level: expert.
When I was a young kid, I remember when two new drugs went on the market: Fen-Phen and Redux. They were weight loss medications, and they were all the rage. People would even travel to Mexico to get ...
Jesus is a 37-year-old man who is proud to keep fighting against cystic fibrosis. Although he doesn't qualify for any modulators, he refuses to let that stop him from living life to the fullest. His ...
Lack of CF awareness, expertise, and health care infrastructure, especially in low- and middle-income countries, may prevent people living with cystic fibrosis from receiving timely and appropriate ...
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