Sickle cell patients and their families are speaking out, saying their pain is being treated with a one-size-fits-all ...
The study will compare NHS and social data to track long term impact of childhood blood disorders.
As the Lowcountry prepares for a winter storm this weekend, state and local officials are urging residents to take ...
A free two-day event in Cambridge will unite experts to discuss translational advances in cell and gene therapy, spanning rare diseases, cancer immunotherapy, and genome editing.
The United Kingdom's Medicines and Healthcare Products Regulatory Agency strengthened its warnings on GLP-1 receptor agonists ...
The Charleston Museum is taking visitors back to one of the most pivotal moments in American history with the opening of its ...
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SCD and the year ahead (3)

In the last few weeks, I have been writing about the year ahead. Let’s dig further.Living with SCD has shaped how I view resilience and what I value most. Resilience is not merely stoic endurance; it ...
It will be a Full Moon in 2 days on Sunday the 1st of February of 2026 at 2:09 pm Some Algonquin peoples call it the ...
Actor turned rare disease advocate Luke Rosen tells how his daughter, Susannah, lives with a KIF1A-associated neurological ...