I spent much of my childhood trying to hide my CF. But after an emergency double-lung transplant, the loss of my sister, and years of mental health challenges, I’m proud to belong to a CF community ...
Cystic fibrosis taught me to prepare for the worst, but pregnancy taught me to make room for hope and trust my body alongside medical care. Through my journey to motherhood, I learned that CF doesn’t ...
Throughout my childhood, I was thin and underweight thanks to cystic fibrosis. When my mother, my sister, and I would go to the trails near our house to exercise, I hated running. I could barely make ...
Since 2013, I’ve had the privilege of being a fitness coach, nutrition coach, public speaker, influencer, and businesswoman. While my true passion lies in adventure — particularly physical challenges ...
The South Texas Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Aspergillus is very common in our environment. Most people breathe in Aspergillus spores every day without getting sick. However, people with cystic fibrosis, or diseases that weaken their immune ...
Cystic fibrosis care is changing quickly — with better treatments, longer lives, and new tools like telehealth. This is pushing us to rethink what high quality, individualized care should look like.
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my ...
Persistence, resilience, and strength of character can overcome many obstacles in life. Marlene Pryson, 86, probably one of the oldest individuals living with cystic fibrosis, certainly possesses all ...