WCIV on MSN

Sickle cell patients ask for individualized care, say MUSC treatment is oversimplified

Sickle cell patients and their families are speaking out, saying their pain is being treated with a one-size-fits-all ...
Medical Marketing & Media

Medicaid tries new approach with sickle cell: Companies get paid only if costly gene therapies work

Under the agreement, participating states will receive “discounts and rebates” from the drugmakers if the treatments don’t ...
Yahoo

Why gene therapy for sickle cell is slow to catch on with patients

A view of paintings related to sickle cell on a table as Dominique Goodson, who has sickle cell and advocates for awareness about the disease, takes a phone call in her room at her home in the ...
ABC7

FDA-approved gene therapies bring hope for sickle cell patients, but high costs pose challenges

LOS ANGELES (KABC) -- It's been more than a month since the FDA approved two milestone gene-editing treatments for sickle cell disease, but lining up patients for these therapies will be a challenge ...

Medicaid has a new way to pay for costly sickle cell treatment: Only if it works

Medicaid is doing a novel payment system for the new, promising and expensive sickle cell treatment. It may become a model ...
WSLS 10

Reducing the stigma around Sickle Cell Anemia, a historically misunderstood disease

ROANOKE, Va. – Ensuring no one fights alone. The Carilion Clinic Sickle Cell Collaborative is holding a walk to honor sickle cell patients and their caregivers on Saturday. Sickle cell disease is a ...
ABC 7 Chicago

Sickle cell patient Braxton Hubbard feels 'amazing' after gene therapy treatment

CHICAGO (WLS) -- Sickle cell anemia disproportionately affects Black people, causing severe pain, potential organ damage and in some cases, death. Many times, only blood transfusions can provide ...
Becker's Hospital Review

Sickle cell patient dies in gene-therapy trial

Beam Therapeutics, based in Cambridge, Mass., released early clinical data from its first trial for patients with sickle cell disease that employed a gene editing tool, known as CRISPR. All four ...
inforum

First CRISPR patient cured of sickle cell speaks in Fargo

Victoria Gray, the first person cured of sickle cell using CRISPR gene editing therapies, spoke in Fargo about her journey and the need to lower the $2M treatment cost. Victoria Gray, cured of sickle ...
WESA

Sickle Cell hotline connects unaffiliated patients to care as pilot program launches in Pa.

Andrea Matthews poses with her son Jonathan Matthews. She started the foundation because her son lives with sickle cell disease. Michelle Parr's sickle cell disease went undiagnosed for 25 years. Her ...
The Voice

Thousands back campaign to keep vital Sickle Cell Day Unit open

The Sickle Cell Day Unit at the Royal London Hospital in Whitechapel, London, remains under threat following a temporary six-month trial, prompting sustained opposition from patients, families, and ...
Medscape

Scotland Approves Gene Therapy for Sickle Cell Disease

NHS Scotland has approved a one-time CRISPR gene therapy for severe sickle cell disease, offering durable reduction in vaso-occlusive crises for eligible patients.