Sickle cell patients and their families are speaking out, saying their pain is being treated with a one-size-fits-all ...

Sickle cell disease, a genetic blood disorder, disproportionately affects Black individuals, with one in 365 Black babies born with it in the U.S. New, high-cost gene therapies offer potential cures ...

To continue reading this content, please enable JavaScript in your browser settings and refresh this page. Ryan Dodson, 18, was diagnosed with sickle cell disease ...

I was cradling my newborn son in my kitchen when I got the call from his pediatrician in winter 2015. "Are you sitting?" he asked somberly. I sank slowly into a chair knowing what he was about to ...

Andrea Matthews poses with her son Jonathan Matthews. She started the foundation because her son lives with sickle cell disease. Michelle Parr's sickle cell disease went undiagnosed for 25 years. Her ...

NORFOLK — From the outside, Olivia Tarrer’s illness is invisible. No one can see her bouts of stabbing hip pain or her compromised immune system, which leaves her vulnerable to viral and bacterial ...

Under the agreement, participating states will receive “discounts and rebates” from the drugmakers if the treatments don’t ...

Young adults with complex chronic childhood-onset conditions such as sickle cell disease and cystic fibrosis experience ...

After attending the first annual Global Sickle Cell Disease Congress in Accra, Ghana, in 2010, Obiageli Nnodu returned home to Nigeria with a deep resolve to combat the disease in her own country.

In recent years, the battle against sickle cell disease in Africa has seen tremendous progress, thanks to modern medical advances and the implementation of comprehensive screening programs. These ...