UPDATE: The 4th annual Take a Swing Fore Batten online auction will be accepting bids from March 15-29, 2021. Click here to browse the incredible collection of items, including tee times at Oakmont, ...

Batten disease is a rare inherited condition that affects brain development and function. CLN3 disease is the most common type of this disease. The symptoms are life-changing. They usually begin ...

For the three out of every 100,000 children who are born with Batten disease, the diagnosis is one of the most devastating that a family can receive. Emily Blackburn, 32, found out in March 2023 that ...

A treatment for juvenile Batten disease has been tested in a mouse model and the results have shown reduced in symptoms and improved longevity. The results of the study were published in Nature ...

A year ago, golf-course architect David Kahn and his wife Karen went public with every parent’s worst nightmare: their twin daughters Amelia and Makenzie are battling Batten disease, the cruelest ...

Batten disease is a family of 13 rare, genetically distinct conditions. Collectively, they are the most prevalent cause of neurodegenerative disease in children, affecting 1 in 12,500 live births in ...

Researchers have described the neurodegeneration that occurs in the nervous system of the bowel in Batten disease, a rare and fatal genetic condition. In their latest study, a team showed that gene ...

Doctors at Boston Children's Hospital met Mila Makovec in 2017. Mila had been diagnosed with incredibly rare Batten disease which is untreatable and fatal. For those suffering from the disease, the ...

Batten disease is a family of 13 rare, genetically distinct conditions. Collectively, they are the most prevalent cause of neurodegenerative disease in children, affecting 1 in 12,500 live births in ...

Twin brothers with an extremely rare genetic disorder which experts said would limit their life expectancy have defied the odds to reach their teens. Freddie and Louie Dawkins were born apparently ...

NEW YORK--(BUSINESS WIRE)--Neurogene Inc., a company founded to bring life-changing genetic medicines to patients and families affected by rare neurological diseases, today announced that the European ...